Witnessing a miracle – life after the NICU

A wave of thankfulness washes over me as I watch my little children munch on veggie straws, flip through books, and jump off couches. I’m witnessing a miracle. It’s not hard to imagine a scenario that ended very differently than the two toddlers running around our home. For different reasons …

Nurses are the heroes of the NICU

Seventy-five days. That’s the collective time we spent in the NICU with our children. Both NICU stays were different. One was short, the other long. The first stay came with a life-altering diagnosis. The second came with life-saving surgery. Both were challenging and emotionally draining experiences. But they are a …

How positive thinking changed my perspective on Down syndrome

You never know when it is going to pop up. A reminder that your child is different. A few months after Harper’s third birthday, we went to an amusement park. Ride after ride Harper didn’t meet the requirements to participate. I knew she would love them, but I couldn’t trust …

What I learned about suffering from my dying friend

Five years ago my friend Courtney was in hospice care. My stomach would drop anytime my phone rang in anticipation of “the call”. I did end up receiving that call a couple of days after Christmas that year. It’s hard to believe that it’s been five years since I lost …

How to wait well during uncertain circumstances

When Harper was born my expectations of motherhood were rocked. An emergency c-section, NICU stay and unexpected Down syndrome diagnosis were a lot for this first time mama to handle. As time passed I made peace with my new reality with the hopes of a brighter future. A part of …

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