With pigtails, a fanny pack, and plastic minnie mouse ears, I was in second grade when my love of Disney World began. From family vacations, dance trips, choir trips, and even a quick stop at the Magic Kingdom during my honeymoon, I’ve visited the parks at random intervals for the …
Thankfulness. It is certainly the word of the month as we draw near to Thanksgiving Day. And as I’ve been mulling over thankfulness, I realized something. There is a certain depth to thankfulness that is delayed. A thankfulness that comes later. It’s easy to be thankful in the moment for …
A wave of thankfulness washes over me as I watch my little children munch on veggie straws, flip through books, and jump off couches. I’m witnessing a miracle. It’s not hard to imagine a scenario that ended very differently than the two toddlers running around our home. For different reasons …
Sometimes I forget that just because Harper isn’t talking yet, doesn’t mean she doesn’t know what is going on. As summer break approached for her special education preschool class, I started preparing her the best I could. Because her whole body communicates how much she loves being there. And I …
Harper turned 4 years old this month. And since we had an at-birth Down syndrome diagnosis, it also marks the beginning of our journey as parents of a special needs child. But we’ve come a long way from the initial shock of that life-changing diagnosis. And there are four great …
Somedays I can almost forget that I’m parenting a child with special needs. Just trotting along down the path, enjoying the scenery and completely enthralled with the beauty and joy Harper exudes. But sometimes I look up and realize that I’m on a different path than the majority. And it …
It’s 4:45 pm and I’m getting dinner on the table. Yes, we eat super early because we have toddlers. And we love eating as a family. So that means an early dinner. After dinner, we clean up, read a few books, play with magnet-tiles, say no to a snack, play …
“Did you know?” It’s a question I often get after talking about my daughter who has Down syndrome. People are curious if we had a prenatal diagnosis or an at-birth diagnosis. I guess it’s like my origin story into the world of Down syndrome. With sophisticated testing options, it is …
Seventy-five days. That’s the collective time we spent in the NICU with our children. Both NICU stays were different. One was short, the other long. The first stay came with a life-altering diagnosis. The second came with life-saving surgery. Both were challenging and emotionally draining experiences. But they are a …
A poem about embracing developmental delays
