In 66 days my little baby boy will be a year old. And I know that I’m going to blink and it will be his birthday, but the first 66 days of his life in the NICU were anything but fast. I felt every painstakingly long moment as we were …
I’ve never really been one for learning a new language. In fact, when everyone else was learning Spanish or French, my middle school self decided to pick Latin – a dead language. I ended up taking many years of Latin and I really don’t have much to show for it. …
We just finished Harper’s annual review through Early Intervention (EI) this week. EI is an amazing program. It provides resources such as occupational and speech therapy for children under 3 years old that need a little extra help meeting developmental milestones. Every state and county is different, but we are …
For most of my life I have hung my hat on three daily habits. These things helped me stay focused, productive and relaxed. Everything seemed to stay in balance if I made sure to get enough sleep, get a walk in and spend some time praying and reading the Bible …
You never know when it is going to hit you. A reminder that your child is different and not following a typical path of development. Harper turned two this week and since we had an at-birth diagnosis this also marks two years into our Down syndrome journey. As I reflect …
Harper turns 2 next month (I can’t believe I have a toddler!) and since we had an at-birth diagnosis, it also marks my entrance into all things Down syndrome. I still consider myself a newbie, but I have spent the last two years learning, listening and reading more about Down …
Harper was shy of her first birthday when we learned we were pregnant. Both my husband and I grew up with siblings close in age and we loved it. So we were excited – a little overwhelmed that we were doing this again so soon – but overall really happy …
We live on Harper’s timeline. Down syndrome impacts Harper’s development. From walking to talking, she has to work harder to achieve what comes more naturally to typically developing children. The pressure to meet milestones with her peers is minimal. For the most part Harper’s pace is a delightful place to …
When Harper was born my expectations of motherhood were rocked. An emergency c-section, NICU stay and unexpected Down syndrome diagnosis were a lot for this first time mama to handle. As time passed I made peace with my new reality with the hopes of a brighter future. A part of …
I shouldn’t be able to write this post yet. But here I am with a dull ache across my c-section incision reminding me of the events that have already transpired. My pregnancy was cut short and we are now a family with two under two. I was only 32 weeks …
